Myasthenia Gravis - does anyone have this?

[Hillbilly Hen]

I just found out last week that I have this. Just wondering if anyone else here has it and how they cope with it? I am just so tired.

 

[turney31]

 

[Wolfwoman]

My hubby has it... almost a year now.

 

[redhen]

What is it?

 

[Hillbilly Hen]

it's an autoimmune neuromuscular disease that causes weakness of the muscles.

 

[Hillbilly Hen]

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How is he treating his? I am trying the meds but I have a very low tolerance to meds.

 

[redhen]

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OOh darn.. sorry.

Is there a cure for it? What kind of treatments/meds?

 

[Hillbilly Hen]

No cure, but I have been researching on the internet that some people have to have their thymus gland removed and that sometimes that will cause it to go into remission. The medicine I take causes me to have facial [eye, tongue] spasams. Problem is that there are quite a few meds that I have to avoid because they will make the symptoms of MG worse.

 

[Wolfwoman]

What meds are you on? His is the ocular type and hasn't progressed any further than his one eye yet.

 

[Hillbilly Hen]

I also have the ocular type but I do have muscle weakness in my arms. I was wondering if the MG is also why I sometimes walk like I have been drinking [I haven't had a drop...honest!] I am taking Mestinon. I will be seeing a new neurologist next week.