Granny's gone and done it again

Tom wanted to know what I did with that basket he gave me. Said we were going to need it to put the baby in. Umm, what baby Tom? The one on TV.he said. I got him to bed and went in to make sure he got in bed and we had a normal Convo about his blanket but as I was leaving he said you know we have to give it back tomorrow. Give what back? The baby he said.
Oh Granny. I've said that I know the pain of your shoulder and neck. I know this pain too. Watching the man you love slowly disappear. There's a reason they call it the slow goodbye. :hugs
 
Oh Granny. I've said that I know the pain of your shoulder and neck. I know this pain too. Watching the man you love slowly disappear. There's a reason they call it the slow goodbye. :hugs
Would you mind talking about how he died? You can pm if you want.
 
No, in fact now my shoulder and back muscles are all tightened up from pain. How are you today?
I'm sorry, you must of landed pretty hard. :hugs Im no good today. I think the pain is changing. It still hurts bad but its a different kind of pain. I don't know how to explain it.
 
Would you mind talking about how he died? You can pm if you want.
Their deaths are all different. Scott was diagnosed then passed only 3 1/2 years later. Some are diagnosed at younger ages and take up to 20 years or longer. Scott was almost 70. I think the older they are the less time it takes..makes sense.
When he declined, he declined quickly through the stages. The last stage only months! Then one night he had an extra, and I mean extra bad and confused night. He couldn't settle down. I won't get into all of the details, only to say it was quite frightening to watch and go through. He had a seizure. Then another in the morning. Hospice had me give him more of his regular meds, then started him on others. He finally settled down. We had a hospital bed brought in for him as he went into coma. Took several days for him to pass while in coma. Was actually a blessing for some of the children that wanted to see him before he passed. They had gone to a grandson's wedding in California. Got back in time to say their goodbyes.
I was thankful he wasn't miserable any longer. We feel the sorrow.
The feeling of beautiful sorrow...losing a person you love leaves both a scar of sadness and etched memories in your soul.
I'm thankful knowing he's in a beautiful place right now, and that I will see him again.
 
:hit I am so sorry Cynthia. Tom will be 87 next month. We never had any test done to say he has it. His Dr just said based on symptoms he did. He also has a bad UTI right now. I can see pus in his urine. I didn't know they are all different though. It sounds very hard to cope with and I can only hope I am as strong as you when the time comes.
 
I talked to him today about going and spending a couple days at a place that would feed him and give him his meds. He said he can take care of himself. I told him he couldn't feed himself or take the right meds. He mentioned Robert and I told him Robert cant do it. I didn't tell him Robert said he cant even take care of himself.
 

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