The Front Porch Swing
- Thread starter Beekissed
- Start date
Lindz I've only just read this and just am lifting you up. I know exactly what you mean when you say there is too much going on ...Sunday my daughter found one of my chickens not acting rt and all I could think was that she was either going to have to heal herself or die because I had hours of wk to do in order to get my grades ready for report cards the following day. Mercifully, she died a couple of hours later. But I do understand
- Thread starter
- #3,823
X2....praying for you now too!
Can someone tell me anything on the family that was caught in the mudslides. I can't remember who asked us to pray, or I'd go to them. 
Unbelievable, it's almost April. So sorry Please stay safe and be careful
Thank you both so much ! I'll keep you all posted as we weather this storm. It has been so beautiful here lately with Spring coming on and all and now this - weather service says this happens here every 10-20 years... It has been just about 10 years since we had something like this in early spring. Saturday supposed to be sunny and low 50's.
- Mar 1, 2013
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- 238
WBF, saying a prayer on behalf of you and yours. I know that wind can be so powerful and so scary! Just prayed!
- Mar 1, 2013
- 4,292
- 379
- 238
@Lindz... your daughter is sooo pretty! 
I have had a couple kids in my family that started out in the NICU and we know the Ronald McDonald House all too well. God bless that place!!! One came at 26 weeks and weighed a little over 3 lbs. His speech was also delayed but once he got started talking... he hasn't shut up yet! LOL And oh yeah, he came out ugly. Now he is a cute little hotshot that the girls all chase after. lol Your daughter will be just fine. And if you hadn't been TOTALLY overwhealmed, something would have been seriously wrong with you. LOL I can see me having a s-e-r-i-o-u-s meltdown if I had all that you had on you on my shoulders! May the Lord Jesus bless you and your kids and "all y'all."
I have had a couple kids in my family that started out in the NICU and we know the Ronald McDonald House all too well. God bless that place!!! One came at 26 weeks and weighed a little over 3 lbs. His speech was also delayed but once he got started talking... he hasn't shut up yet! LOL And oh yeah, he came out ugly. Now he is a cute little hotshot that the girls all chase after. lol Your daughter will be just fine. And if you hadn't been TOTALLY overwhealmed, something would have been seriously wrong with you. LOL I can see me having a s-e-r-i-o-u-s meltdown if I had all that you had on you on my shoulders! May the Lord Jesus bless you and your kids and "all y'all." 
Oh, I just loved reading your story and learning about your precious baby! I'm so glad you shared it all! Isn't it amazing how something so special and amazing can come from so much turmoil, chaos, and mixed emotions? I have to tell you, I think given your circumstances I would have had the same reactions - I didn't see anything to judge! She is an absolutely gorgeous little girl, and I know that when you look at her there isn't a remnant of those old insecurities about her arrival.
WARNING: Long, possibly boring, so feel free to skip if you want...I won't mind a bit.
When Jen and Kenny found out that Kendra would be born with Spina Bifida, we had a lot of juggling to do. They told us that she would have to be delivered at Children's or University in Denver, and I've never been to Denver in my life! As it worked out, Kenny wasn't able to get the time off work because her obstetrician here, the one who had delivered Katie, realized that Jenny was beginning to show signs of pre-eclampsia again, so Jenny and I ended up having to go down the first week of August. We stayed at the Ronald McDonald House in Aurora for 6 weeks.
We could not get the doctor down there to understand Jenny's issues with swelling. "All pregnant women swell." Really? Like 20 pounds in 10 days? I'd take her in to the ER for being short of breath and not peeing, and they'd say, "She's terribly swollen. This pit edema is really bad." But her blood pressures stayed just on the high side of normal, her labs showed very little protein in what little bit of urine they could get, and they'd decide she was dehydrated and pump her full of fluids. They gave her that little hat for 24 hour urine collection and they'd be irritated with her when we turned it because "She wasn't using it correctly." Yes she was - she just didn't produce any urine! Every bit of that extra fluid they pumped into her, or forced her to drink, stayed in her tissues and she'd swell more. The baby continued to do well.
We begged him to take this baby a couple of weeks early. I told him, and he had her previous records to back it up, that Jenny didn't really go into pre-eclampsia until AFTER Katie was born, a called 'post partum pre-eclampsia. To make matters worse, Jenny suffers from Grand Mal epilepsy. But he wouldn't' budge. We asked for another doctor - but he was head of obstetrics. He told me I had to be a better caregiver and Jenny had to "quit whining" - his exact words. We both left that appointment in tears, but we felt trapped - helpless because we didn't know where else to turn.
Finally on September 1, the day he had settled on from the beginning, at University Hospital he did the c-section. I was with Jenny the whole time - held her hand and talked to her, trying to keep her calm. But she was so terribly, terribly sick, and worried because we had no idea how bad Kendra's defect would be. I was scared to death because I knew what was going to happen to Jenny and I knew how fast things went sour with her with Katie When Kendra was born the first thing that shocked everyone was that unlike most myleomengocyles, Kendra's was not contained in a fluid filled sac. It was wide open. She was immediately put into a sterile plastic bag from almost mid chest down. She wouldn't breathe. She was on breathing assistance for quite awhile. Jenny got a quick peak before Kendra was moved down to immediate care, and later that afternoon I took her down there to spend a little more time with Kendra. After baby stabilized they took her by ambulance over to Children's Hospital. I was running back and forth between the two patients in two hospitals, reassuring a terrified and miserably sick Jenny with dozens of photos of Kendra in the NICU & videos, then trying to be there for the baby. So I know exactly what that feeling of being torn is!
Kendra's surgery was the next morning, coincidentally on Jenny's birthday. Jenny sneaked out of the hospital. I was in the lobby at Children's when I saw her get off the shuttle bus. I asked her if she had permission to leave, and she told me she didn't need their permission to be a mom. Good girl, Jenny!
Kendra's surgery went well, I got Jenny back to the hospital, and I resumed the trips back and forth. Jenny was discharged four days later, despite the fact that she was still short of breath, still had severe pitting edema, and at one point while still in the hospital her blood pressure was 165/115! The nurse thought she had a bad vitals rig and retook it - it was down to 150/105 and she said, "That's better." and that's the pressure she charted. That happened twice, because Jenny would text me the numbers every time they took it. But they discharged her. She was hurting so bad and so sick that she didn't even want to go to Children's to see Kendra - she just wanted to get back to the Ronald McDonald House and sleep. I tempted her to eat with everything I could think of, but she wasn't hungry either.
She rallied slightly, but had so much trouble breathing that I took her back in. They prescribed oxygen and set us up with delivery to the House. Kendra was discharged on a Thursday. We made our plans to come home the next day and set Jenny up with her obstetrician here. I had been keeping her updated via email, and I've kept every one of them. She was livid - even called the doctor in Denver to warn him about Jenny, but he insisted that she was doing very well. But the Friday we were going to come home, Jenny and I realize that neither of us was really comfortable catheterizing this newborn with the huge incision on her back, so we opted to take her to Children's for a little more instruction. Good thing we did. At 5 am on Saturday morning Jenny woke me. She was gasping for air and whispering "Help me. I can't breathe." I pushed up her oxygen by 2 liters and called an ambulance.
It is probably around a mile from the House to the hospital. In that time the paramedics gave her two nitro tablets and a nitro spray. I couldn't go to up there because I had Kendra and the ER at Denver's University Hospital was not a place I wanted to take a newborn with a huge incision. Finally one of the other grammas up there whose granddaughter was born with only half a heart the week before Kendra was born said she'd take care of Kendra long enough for me to go up there and supply medical info and find out what was going on. The four of us - Jenny, me, the other baby's mom and gramma, had become really close, so I jumped at it. (This family lives in Riverton, about 4 hours from us, and for two years we have, and will continue, to celebrate Sophia and Kendra's birthdays together, complete with matching outfits!)
Jenny was terrified, but so out of it all she could do was cry. She was afraid she was going to die without ever holding her daughter. They put her immediately on IV Lasix. She spent 5 days in ICU. The first 24 hours there she lost 46 pounds, and when I finally had another chance to see her two days later her she was smiling - she couldn't wait to show me her legs. But all of this caused her to have pulmonary hypertension. She was literally drowning in all the fluids they pushed and she retained. I love Children's for the care and love that Kendra received. But I'd rather have taken Jenny to a veterinarian for her care than Dr. Schwartz. We left Denver the day that Jenny was discharged and when we got here her beloved Dr. Williams immediately scheduled her for post-partum, cardiac and pulmonary care.
So was it worth it. You betcha!
Kendra's owie.
Tucked back into her "baggie" after the nurse showed us her back.
8 hours post-surgery
Jenny the night before I called the ambulance, and a week after Kendra was born.
Jenny after only 48 hours of treatment in ICU. She was so proud of those legs!
Kendra at Evan's basketball game yesterday.
WARNING: Long, possibly boring, so feel free to skip if you want...I won't mind a bit.
When Jen and Kenny found out that Kendra would be born with Spina Bifida, we had a lot of juggling to do. They told us that she would have to be delivered at Children's or University in Denver, and I've never been to Denver in my life! As it worked out, Kenny wasn't able to get the time off work because her obstetrician here, the one who had delivered Katie, realized that Jenny was beginning to show signs of pre-eclampsia again, so Jenny and I ended up having to go down the first week of August. We stayed at the Ronald McDonald House in Aurora for 6 weeks.
We could not get the doctor down there to understand Jenny's issues with swelling. "All pregnant women swell." Really? Like 20 pounds in 10 days? I'd take her in to the ER for being short of breath and not peeing, and they'd say, "She's terribly swollen. This pit edema is really bad." But her blood pressures stayed just on the high side of normal, her labs showed very little protein in what little bit of urine they could get, and they'd decide she was dehydrated and pump her full of fluids. They gave her that little hat for 24 hour urine collection and they'd be irritated with her when we turned it because "She wasn't using it correctly." Yes she was - she just didn't produce any urine! Every bit of that extra fluid they pumped into her, or forced her to drink, stayed in her tissues and she'd swell more. The baby continued to do well.
We begged him to take this baby a couple of weeks early. I told him, and he had her previous records to back it up, that Jenny didn't really go into pre-eclampsia until AFTER Katie was born, a called 'post partum pre-eclampsia. To make matters worse, Jenny suffers from Grand Mal epilepsy. But he wouldn't' budge. We asked for another doctor - but he was head of obstetrics. He told me I had to be a better caregiver and Jenny had to "quit whining" - his exact words. We both left that appointment in tears, but we felt trapped - helpless because we didn't know where else to turn.
Finally on September 1, the day he had settled on from the beginning, at University Hospital he did the c-section. I was with Jenny the whole time - held her hand and talked to her, trying to keep her calm. But she was so terribly, terribly sick, and worried because we had no idea how bad Kendra's defect would be. I was scared to death because I knew what was going to happen to Jenny and I knew how fast things went sour with her with Katie When Kendra was born the first thing that shocked everyone was that unlike most myleomengocyles, Kendra's was not contained in a fluid filled sac. It was wide open. She was immediately put into a sterile plastic bag from almost mid chest down. She wouldn't breathe. She was on breathing assistance for quite awhile. Jenny got a quick peak before Kendra was moved down to immediate care, and later that afternoon I took her down there to spend a little more time with Kendra. After baby stabilized they took her by ambulance over to Children's Hospital. I was running back and forth between the two patients in two hospitals, reassuring a terrified and miserably sick Jenny with dozens of photos of Kendra in the NICU & videos, then trying to be there for the baby. So I know exactly what that feeling of being torn is!
Kendra's surgery was the next morning, coincidentally on Jenny's birthday. Jenny sneaked out of the hospital. I was in the lobby at Children's when I saw her get off the shuttle bus. I asked her if she had permission to leave, and she told me she didn't need their permission to be a mom. Good girl, Jenny!
Kendra's surgery went well, I got Jenny back to the hospital, and I resumed the trips back and forth. Jenny was discharged four days later, despite the fact that she was still short of breath, still had severe pitting edema, and at one point while still in the hospital her blood pressure was 165/115! The nurse thought she had a bad vitals rig and retook it - it was down to 150/105 and she said, "That's better." and that's the pressure she charted. That happened twice, because Jenny would text me the numbers every time they took it. But they discharged her. She was hurting so bad and so sick that she didn't even want to go to Children's to see Kendra - she just wanted to get back to the Ronald McDonald House and sleep. I tempted her to eat with everything I could think of, but she wasn't hungry either.
She rallied slightly, but had so much trouble breathing that I took her back in. They prescribed oxygen and set us up with delivery to the House. Kendra was discharged on a Thursday. We made our plans to come home the next day and set Jenny up with her obstetrician here. I had been keeping her updated via email, and I've kept every one of them. She was livid - even called the doctor in Denver to warn him about Jenny, but he insisted that she was doing very well. But the Friday we were going to come home, Jenny and I realize that neither of us was really comfortable catheterizing this newborn with the huge incision on her back, so we opted to take her to Children's for a little more instruction. Good thing we did. At 5 am on Saturday morning Jenny woke me. She was gasping for air and whispering "Help me. I can't breathe." I pushed up her oxygen by 2 liters and called an ambulance.
It is probably around a mile from the House to the hospital. In that time the paramedics gave her two nitro tablets and a nitro spray. I couldn't go to up there because I had Kendra and the ER at Denver's University Hospital was not a place I wanted to take a newborn with a huge incision. Finally one of the other grammas up there whose granddaughter was born with only half a heart the week before Kendra was born said she'd take care of Kendra long enough for me to go up there and supply medical info and find out what was going on. The four of us - Jenny, me, the other baby's mom and gramma, had become really close, so I jumped at it. (This family lives in Riverton, about 4 hours from us, and for two years we have, and will continue, to celebrate Sophia and Kendra's birthdays together, complete with matching outfits!)
Jenny was terrified, but so out of it all she could do was cry. She was afraid she was going to die without ever holding her daughter. They put her immediately on IV Lasix. She spent 5 days in ICU. The first 24 hours there she lost 46 pounds, and when I finally had another chance to see her two days later her she was smiling - she couldn't wait to show me her legs. But all of this caused her to have pulmonary hypertension. She was literally drowning in all the fluids they pushed and she retained. I love Children's for the care and love that Kendra received. But I'd rather have taken Jenny to a veterinarian for her care than Dr. Schwartz. We left Denver the day that Jenny was discharged and when we got here her beloved Dr. Williams immediately scheduled her for post-partum, cardiac and pulmonary care.
So was it worth it. You betcha!
Kendra's owie.
Tucked back into her "baggie" after the nurse showed us her back.
8 hours post-surgery
Jenny the night before I called the ambulance, and a week after Kendra was born.
Jenny after only 48 hours of treatment in ICU. She was so proud of those legs!
Kendra at Evan's basketball game yesterday.
Oh, me too!!!!
You are a wonderful mom!! I can't even imagine bring in your position. How good God is!Oh, I just loved reading your story and learning about your precious baby! I'm so glad you shared it all! Isn't it amazing how something so special and amazing can come from so much turmoil, chaos, and mixed emotions? I have to tell you, I think given your circumstances I would have had the same reactions - I didn't see anything to judge! She is an absolutely gorgeous little girl, and I know that when you look at her there isn't a remnant of those old insecurities about her arrival. WARNING: Long, possibly boring, so feel free to skip if you want...I won't mind a bit. When Jen and Kenny found out that Kendra would be born with Spina Bifida, we had a lot of juggling to do. They told us that she would have to be delivered at Children's or University in Denver, and I've never been to Denver in my life! As it worked out, Kenny wasn't able to get the time off work because her obstetrician here, the one who had delivered Katie, realized that Jenny was beginning to show signs of pre-eclampsia again, so Jenny and I ended up having to go down the first week of August. We stayed at the Ronald McDonald House in Aurora for 6 weeks. We could not get the doctor down there to understand Jenny's issues with swelling. "All pregnant women swell." Really? Like 20 pounds in 10 days? I'd take her in to the ER for being short of breath and not peeing, and they'd say, "She's terribly swollen. This pit edema is really bad." But her blood pressures stayed just on the high side of normal, her labs showed very little protein in what little bit of urine they could get, and they'd decide she was dehydrated and pump her full of fluids. They gave her that little hat for 24 hour urine collection and they'd be irritated with her when we turned it because "She wasn't using it correctly." Yes she was - she just didn't produce any urine! Every bit of that extra fluid they pumped into her, or forced her to drink, stayed in her tissues and she'd swell more. The baby continued to do well. We begged him to take this baby a couple of weeks early. I told him, and he had her previous records to back it up, that Jenny didn't really go into pre-eclampsia until AFTER Katie was born, a called 'post partum pre-eclampsia. To make matters worse, Jenny suffers from Grand Mal epilepsy. But he wouldn't' budge. We asked for another doctor - but he was head of obstetrics. He told me I had to be a better caregiver and Jenny had to "quit whining" - his exact words. We both left that appointment in tears, but we felt trapped - helpless because we didn't know where else to turn. Finally on September 1, the day he had settled on from the beginning, at University Hospital he did the c-section. I was with Jenny the whole time - held her hand and talked to her, trying to keep her calm. But she was so terribly, terribly sick, and worried because we had no idea how bad Kendra's defect would be. I was scared to death because I knew what was going to happen to Jenny and I knew how fast things went sour with her with Katie When Kendra was born the first thing that shocked everyone was that unlike most myleomengocyles, Kendra's was not contained in a fluid filled sac. It was wide open. She was immediately put into a sterile plastic bag from almost mid chest down. She wouldn't breathe. She was on breathing assistance for quite awhile. Jenny got a quick peak before Kendra was moved down to immediate care, and later that afternoon I took her down there to spend a little more time with Kendra. After baby stabilized they took her by ambulance over to Children's Hospital. I was running back and forth between the two patients in two hospitals, reassuring a terrified and miserably sick Jenny with dozens of photos of Kendra in the NICU & videos, then trying to be there for the baby. So I know exactly what that feeling of being torn is! Kendra's surgery was the next morning, coincidentally on Jenny's birthday. Jenny sneaked out of the hospital. I was in the lobby at Children's when I saw her get off the shuttle bus. I asked her if she had permission to leave, and she told me she didn't need their permission to be a mom. Good girl, Jenny! Kendra's surgery went well, I got Jenny back to the hospital, and I resumed the trips back and forth. Jenny was discharged four days later, despite the fact that she was still short of breath, still had severe pitting edema, and at one point while still in the hospital her blood pressure was 165/115! The nurse thought she had a bad vitals rig and retook it - it was down to 150/105 and she said, "That's better." and that's the pressure she charted. That happened twice, because Jenny would text me the numbers every time they took it. But they discharged her. She was hurting so bad and so sick that she didn't even want to go to Children's to see Kendra - she just wanted to get back to the Ronald McDonald House and sleep. I tempted her to eat with everything I could think of, but she wasn't hungry either. She rallied slightly, but had so much trouble breathing that I took her back in. They prescribed oxygen and set us up with delivery to the House. Kendra was discharged on a Thursday. We made our plans to come home the next day and set Jenny up with her obstetrician here. I had been keeping her updated via email, and I've kept every one of them. She was livid - even called the doctor in Denver to warn him about Jenny, but he insisted that she was doing very well. But the Friday we were going to come home, Jenny and I realize that neither of us was really comfortable catheterizing this newborn with the huge incision on her back, so we opted to take her to Children's for a little more instruction. Good thing we did. At 5 am on Saturday morning Jenny woke me. She was gasping for air and whispering "Help me. I can't breathe." I pushed up her oxygen by 2 liters and called an ambulance. It is probably around a mile from the House to the hospital. In that time the paramedics gave her two nitro tablets and a nitro spray. I couldn't go to up there because I had Kendra and the ER at Denver's University Hospital was not a place I wanted to take a newborn with a huge incision. Finally one of the other grammas up there whose granddaughter was born with only half a heart the week before Kendra was born said she'd take care of Kendra long enough for me to go up there and supply medical info and find out what was going on. The four of us - Jenny, me, the other baby's mom and gramma, had become really close, so I jumped at it. (This family lives in Riverton, about 4 hours from us, and for two years we have, and will continue, to celebrate Sophia and Kendra's birthdays together, complete with matching outfits!) Jenny was terrified, but so out of it all she could do was cry. She was afraid she was going to die without ever holding her daughter. They put her immediately on IV Lasix. She spent 5 days in ICU. The first 24 hours there she lost 46 pounds, and when I finally had another chance to see her two days later her she was smiling - she couldn't wait to show me her legs. But all of this caused her to have pulmonary hypertension. She was literally drowning in all the fluids they pushed and she retained. I love Children's for the care and love that Kendra received. But I'd rather have taken Jenny to a veterinarian for her care than Dr. Schwartz. We left Denver the day that Jenny was discharged and when we got here her beloved Dr. Williams immediately scheduled her for post-partum, cardiac and pulmonary care. So was it worth it. You betcha!Kendra's owie.
Tucked back into her "baggie" after the nurse showed us her back.
8 hours post-surgery
Jenny the night before I called the ambulance, and a week after Kendra was born.
Jenny after only 48 hours of treatment in ICU. She was so proud of those legs!
Kendra at Evan's basketball game yesterday.
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